Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body

Ghost Boy The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body They all thought he was gone But he was alive and trapped inside his own body for ten years In January Martin Pistorius aged twelve fell inexplicably sick First he lost his voice and stopped ea

  • Title: Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body
  • Author: Martin Pistorius Megan Lloyd Davies
  • ISBN: 9781400205837
  • Page: 472
  • Format: Paperback
  • They all thought he was gone But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick First he lost his voice and stopped eating Then he slept constantly and shunned human contact Doctors were mystified Within eighteen months he was mute and wheelchair bound Martin s parents were told an unknThey all thought he was gone But he was alive and trapped inside his own body for ten years.In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick First he lost his voice and stopped eating Then he slept constantly and shunned human contact Doctors were mystified Within eighteen months he was mute and wheelchair bound Martin s parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.Martin was moved to care centers for severely disabled children The stress and heartache shook his parents marriage and their family to the core Their boy was gone Or so they thought.Ghost Boy is the heart wrenching story of one boy s return to life through the power of love and faith In these pages, readers see a parent s resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin s mental alertness betrayed by his lifeless body.We also see a life reclaimed a business created, a new love kindled all from a wheelchair Martin s emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.

    • ✓ Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body || ✓ PDF Read by ↠ Martin Pistorius Megan Lloyd Davies
      472 Martin Pistorius Megan Lloyd Davies
    • thumbnail Title: ✓ Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body || ✓ PDF Read by ↠ Martin Pistorius Megan Lloyd Davies
      Posted by:Martin Pistorius Megan Lloyd Davies
      Published :2019-03-09T12:10:30+00:00

    One thought on “Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body

    1. Petra X

      What do you think the worst things to tolerate would be if you had locked-in syndrome and could not communicate at all with people who did not even realise you had cognitive function? Unseasoned food, too-hot coffee (fed through a straw) and being positioned with his testicles trapped under him in his wheelchair. Also that having to watch Barney loving everyone on the care home tv was driving him mad.The author fell into a vegetative state at age 12 and started to come round at 16, but it was no [...]

    2. Carmen

      Only Virna touches me for no other reason than to soothe my aching body - she comforts and heals, making me feel like something other than the repulsive creature I know I am.This book is horrifying on many levels. When Pistorius was 12, he came down with an unknown illness that trapped him inside his own body. Within a few weeks he became paralyzed. Unable to speak or move, Pistorius was a prisoner. Put into a day-home with people with an I.Q. or 30 or lower, Pistorius was still in full possessi [...]

    3. Esther

      This is the incredible story of a once-normal 12 year old boy who fell inexplicably sick and became a « living vegetable ». For six years, he’s “out”. Between the age of 18 and 20, his mind slowly but steadily resurges, while his body remains totally unresponsive to his will. To the world, including the people caring for him and even to his family, he still seems the lifeless body without a brain or any intelligence. While Martin himself does not remember being the once-normal 12 year ol [...]

    4. Sal Noel

      If you work with people with disabilities- specifically Profound and Multiple you really should read this book. I came in at the end of an interview on Radio 4 with the author, and noted down the title. I tend to buy books almost by chance- quick read of the blurb, or a writer I already know. I went out that week to buy this book. The story is remarkable. Imagine coming round and having lost part of your life and not being able to communicate. Not saying when you were uncomfortable, being spoken [...]

    5. Laura Evlolle

      Die Bewertung gilt nicht der Geschichte, sondern drückt mein Lesevergnügen aus. Autobiografien sind nämlich meiner Meinung nach oft nicht zu bewerten und unter diese Kategorie fällt auch die Geschichte von Martin Pistorius.Die Geschichte war alles in allem sehr schockierend, ergreifend und interessant, auch wenn ich die ein oder andere Stelle als ein wenig langwierig empfunden habe.

    6. Elaine

      I was so eager to read this book, the story sounded amazing. Unfortunately it was poorly written. I was actually bored at some of the rambling and skipped through pages and pages. The "characters" were real people, they should have been "developed" more. I didn't really feel a connection to any of them, except Martin. I truly don't understand the 4 and 5 star ratings. I think they are based on the idea of the story, not the book itself.

    7. Matthew Ciarvella

      This is a heartfelt and moving story. Don't let the three stars mislead you; this will pull on your heartstrings and make you appreciate just how much we take it for granted that we can verbalize our communications. Nevertheless, the promo information misrepresented the nature of the story and made it seem like Martin was completely unable to communicate or let anyone know that he was conscious at all.Second, the narrative framing is somewhat hard to follow. Events are presented out of sequence [...]

    8. Marianna

      What a wonderful story that was so poorly written it was sad. This had the potential to be a great story, perhaps even an important story, but the crafting of this story made it seem uninteresting and mundane. The publisher should have hired someone to write this.

    9. Kirsti

      Sometimes you find those remarkable life stories that are almost too awe inspiring to be true. This is the case with this book. Martin has to overcome extraordinary odds in order to be able to write this book, and faces deep personal issues outside of his illness before he can accept who he is and the love of an equally extraordinary woman. I loved this personal account, and I loved the way this book was written between times because it made the reality of his illness always at the forefront. A [...]

    10. Ashleigh

      I'm not going to rehash the plot, because it's already been done, so I'll get right to my review of the book. I give Martin Pistorious a lot of credit for not only surviving a devastating illness, but thriving despite it. His story is remarkable and inspiring. However, the editing and sequencing of the events in the book caused me knock a few stars off of my rating. The chapters skipped from one year to another in no sequential order, and no dates were given so I couldn't begin each section of t [...]

    11. Mary Jo

      Great story for everyone to learn more about augmentative and alternative communication. A must read for speech therapists and special educators.

    12. Pei Pei

      I read this after hearing about Pistorius's story on "Invisibilia," and I'm torn on reviewing the book. On the one hand, the story itself is unbelievably gripping and fascinating. I also do believe, strongly, that it's crucial that he got to tell his own story, after so many years of silence. That said, I felt like I would rather have read a really good third-person nonfiction account of the whole thing. Like a Laura Hillenbrand book, or something along the lines of The Immortal Life of Henriett [...]

    13. Mary

      The ONE book I'm going to recommend to EVERYONE. Period.I can't describe how honest and dear this story is, how I laughed through tears, cheered quietly, mourned, happily sighed, and came to an unlikely empathy with Martin the two hours (3-5 a.m.) it took me to devour it. Read it. Buy it and share it. (It's too good to check out of the library, because you'll want it on your shelves. Really!) But I hope all libraries find this book and add it to their collection!

    14. Rebecca McNutt

      This book is one of the most amazing true stories I've ever read. Imagine seeing your entire family fall apart? Imagine being left behind at a full-time care facility to be watched by nurses and doctors all the time? Imagine being trapped in your own mind? But escape was possible for the author of this unforgettable memoir. Ghost Boy is a story about reclaiming life and beating the odds, but it's also about the rest of the author's family and how they coped with the diagnosis that their son was [...]

    15. Mai Laakso

      Tämä on uskomaton kertomus pojasta, jonka kehitys alkoi hidastua ja häneen ei saanut minkäänlaista kontaktia. Hän oli päivisin hoitokodeissa ns. säilössä, mutta onneksi sinne tuli toimintaterapeutiksi henkilö, joka huomasi, että martin ymmärtää, mutta ei pysty kommunikoimaan. Nykyisin Martin on naimisissa ja kulkee luennoimassa vammastaan puhesyntetisaattorin avulla.

    16. Diane V-R

      "In January 1988, aged twelve, Martin Pistorius fell inexplicably sick. First he lost his voice and stopped eating; then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told that an unknown degenerative disease had left him with the mind of a baby and he probably had less than two years to live. Martin went on to be cared for at centres for severely disabled children, a shell of the bright, viva [...]

    17. AbbassMaanna

      An overwhelming, heart-breaking true story of Martin Pistorius .The kid who was diagnosed with an unknown neurological disorder that kept him trapped in his own lifeless body; a ghost boy having a soul with a useless body.I don’t want to spoil the miraculous story of Martin. But I should say, as Martin wanted from writing his own life experience, that everyone’s life is a white piece of paper that’s colored upon which colors he wants whatever his circumstances are.As the Bible says:” The [...]

    18. Willow Brooks

      This book is so bitter sweet. I honestly still feel like crying over this story. This man was trapped in his body for 12 years and knew everything that was said and done to him. Abused in so many ways including raped by caretakers. My heart breaks for him. This true story is terrifying, and encouraging. This story should be an example to all when you think of leaving someone you love in the hands of other people, knowing your loved one can't communicate their pain, emotions, or the horrible thin [...]

    19. Kate Letterman

      It's a good story, but not a good book. There are a lot of things that I felt were problematic, and maybe not handled correctly. It was sometimes physically painful for me to read this. I will say this book brings many important issues to light, many of which most people might not even think about, such as mistreatment of people in care homes.

    20. حماس

      مارتن، الذي بقى حبيس جسده لقرابة ال 13 عامًا!!ومنذ الثانية عشر!آملُ أن أجد هذا الكتاب قريبًا

    21. Michael Van in

      I came across Martin Pistorius' name by chance while reading a technical item on PC accessibility tools, years ago. I was so intrigued by the glimpse into his experience that I wrote to him to get to know more about his amazing story. We corresponded several times and became quite friendly. When Martin told me he was having his biography published, I impatiently waited for about fourteen months to read it.This is one of those astounding biographies that reveals the hidden but exceptional people [...]

    22. Juanita

      Ghost Boy is written as a journey, which the reader takes along with the writer. The journey gives a vivid picture of what one individual with physical limitations goes through and how they meet each new experience along the way. This book is written in the voice of the author/main character, Martin pistorius.I cannot say enough good things about Ghost Boy. Late at night I struggled to put the book down. I felt propelled to turn each and every page. Martin held my complete attention.Ghost Boy aw [...]

    23. Amanda

      Wow.Martin's story is intense, from beginning to end. This is definitely a page-turner. I could barely put it down. Still, there are some parts that are hard to read. For example, while reading about some of the abhorrent things he experienced in a care home, I literally felt bile rise in my throat as I started gagging. He doesn't hold back.I couldn't help but be continuously intrigued and inspired by his story. His miraculous recovery and journey "back to life" as he slowly gained his independe [...]

    24. Mota

      If you're not moved by this book you're made of stone. I think it's very brave of him to be so open & honest about his life in such a genuine & humble manner. I wish him a life full of everything his heart desires.

    25. Jen

      Ugh, how does one rate an autobiography of someone who went through SO MUCH and triumphed? I'm going to go with 4.5 stars, rounded down to 4, because I didn't love it enough to make it a keeper and re-read it.It IS a worthy book to read though. It's the story of a man who was basically "locked in" to his body after a mysterious illness made him comatose, then in an awakened state, but where he had no control over his body or speech. For years. I give this man credit, he did NOT go insane or will [...]

    26. Stephanie Ward

      4.5 Stars'Ghost Boy' is the raw and emotional memoir of Martin Pistorius, who was misdiagnosed when he fell ill as a preteen and had to endure the next ten years of his life trapped inside his own body and not knowing if things would ever change for him. It's an emotional roller coaster of a book - heartbreaking and tragic, but at the same time full of hope and faith.I had seen this book around lately and thought that the description sounded incredibly fascinating. I like to read memoirs once in [...]

    27. Barb

      A truly inspirational story, I loved listening to Martin Pistorius's memoir. Martin was a healthy twelve year old boy when a mysterious illness left him in a coma-like state. This is the story of how, with the love and devotion of his parents and one very important caregiver, he "came back to life" years later.While parts of the story are difficult to listen to, the whole of it is uplifting. It broke my heart thinking about his parents and their battle to get help for him and also cope with the [...]

    28. Barb McKinley

      What a great read. Author, Martin Pistorius gives a glimpse into the life of a boy that succumbs to illness and wakes up after 4 years trapped in a body that won't move or speak. This is his amazing journey back to earth.Mr. Pistorius'writing style is easy to read with a definite gift for keeping an autographical book interesting. I would like to see Mr. Pistorius write some type of fiction. I rarely read non-fiction but his story intrigued by what I saw in a news piece.I am so glad that I took [...]

    29. Elisabeth Manley

      Finally! This may have gotten a 4 if it didn't take me so long to get through but I just broke it up too much, blame school ruining all my fun reading time. I liked that we got to follow Martin through his journey and accompanying pictures through those times so that by the end you really appreciate the happy ending and can understand the struggles he went through to get there. I wish I knew more about his progressions and changes in daily abilities near the end where the focus shifted mostly to [...]

    30. PuPilla

      Remény. Remény. Remény. Nem gondoltam, hogy megérint majd, mégis meg tudott. Martin egy kivételes ember, örülök, hogy megismertem a sorokon keresztül, és csak hüledezem, miért vannak ilyen betegségek :(A képek a végén különösen melengették a szívemet. Bővebben: pupillaolvas/2015/

    Leave a Reply

    Your email address will not be published. Required fields are marked *